What information we may collect
Personal information is collected at the following times:
- When you register to our Services or update your profile, we ask you to provide your name, occupation, specialty, office phone, email address and password. We collect this information and use it to verify that you are a professional healthcare provider to ensure that our network is comprised by trusted members from the medical community. If we are unable to verify your credentials from the information you provide at registration, you may be required to send us additional evidence to support your affiliation to an academic or medical institution or board certifications.
- When you set up or update your network profile, you have an option to provide additional information that will be linked to your account. You can add such information by updating your profile yourself or importing such information from third party vendors. Providing such information is completely optional, but enables you to better identify yourself and communicate with your peers. All of the information that you voluntarily provide and choose to include in your profile, will be accessible to other members of our network.
- When you invite others to join our Services, you may enter their names and email addresses, which FDNA will use to send your invitation including a message that you write.
- When you contact customer support, we may collect information in order to, among other things, accurately categorize and respond to your inquiry and deliver appropriate service levels.
- When you use our mobile application to locate services near you, we collect your precise geolocation data.
- When you select to receive educational and event communications or product or other related communications.
In addition to the “personal information” we may collect, when using our Services, we may collect “non-personal information” about your use of our Services, including pages and screens that you view, your computer’s internet protocol (IP) addresses, your computer’s or mobile device operating system and/or browser type, the identity of your internet service provider, referring/exit pages, date/time stamp, and click-stream data (i.e., a list of pages or URLs visited). In some cases, this non-personal information may be collected automatically and stored in log files to help us analyze trends, administer the site, track users’ movements around the site, and gather demographic information about our user base as a whole. However, this information, when used together with cookies (see “cookies” below for more information) or if collected when you are logged-in, may be used to link or associate such information to your personally identifiable information.
Posts that contains Personal Health Information (“PHI”)
Consent to FDNA receiving and processing information about you
How we may use the information we collect
Our Service help medical professionals to search and reference genetic syndromes, maintain their personal search history archive and facilitate easy peer communication. The information you choose to provide on our Service is used to help you describe yourself to other Users. Other information, that does not personally identify you as an individual, is collected by FDNA from Users (such as, for example, patterns of utilization) and is exclusively owned by FDNA. This information is used by us to continue to improve our Services and to perform our marketing communications.
FDNA’s communications to you
FDNA will communicate with you through email, through notices posted on our website or mobile applications or through other means available through our Service, including mobile alerts, push notifications, text and other forms of messaging. If we send any communications to you via the carrier service with which you have a mobile communications subscription or otherwise have access, you understand you will pay any service fees associated with any such access (including text messaging charges for messages to your mobile device). Our communications to you include emails which help us operate and improve our Services, respond to your comments and questions and provide customer service, provide and deliver products and services you request, send you related information, including confirmations, invoices, technical notices, updates, security alerts, and support and administrative messages, better understand you so that we may tailor messaging and services based on your interests, preferences, needs and specialties, send you information via email about products and services or new features, we or our selected partners offer.
Information provided to FDNA (or to third parties with whom it offers combined services) is also used to customize your experience on our Services. For example, you can build a personal search history archive and display them in the context of references to a new case.
Sharing information with third parties
FDNA does not share any Personal Information it collects with any third party, except for the following:
We may employ other companies or individuals to perform functions on our behalf. Examples of those service providers include analyzing data, providing marketing assistance and providing customer service. They may receive limited access to personal information needed to perform their functions, but they may not use it for other purposes.
We may use third-party software for various internal needs. Examples of those software include file storage services, analytics tools, infrastructure platforms and communication platforms.
We may segment our Users by occupation, specialty, geographic location or other similar information and provide information from your public profile as part of our Services and product offerings.
When you use the FDNA Service through our websites, newsletters, mobile apps or other medium, you may be presented with advertisements or opportunities to engage in informational programs consisting of sponsor-selected content. Examples of these programs include sponsored news alerts or branded or unbranded discussion groups. All sponsored programs are labeled clearly as sponsored. When you choose to engage with a sponsored program, such as engaging with a commercial client’s sponsored news alert, you give your consent to provide the sponsor of such content with your personal information and information about the type of engagement (e.g., whether you viewed, interacted with or requested information about such promotional content).
Surveys and Polls
Communications to other users
Communications you initiate through FDNA, such as a colleague invitation sent to a non-User or posting a comment in any of our professional message boards, will list your name in the message.
In order to diffuse the information posted in our public message boards to a wider audience, we may, from time to time, collect your postings and group them together to use in a specific publication, print, electronic mailing or other public dissemination. When your postings are used in this fashion, they may be edited to fit with the general content of the publication being prepared.
It is possible that we may need to disclose personal information when required by law, such as responses to civil or criminal subpoenas, or other requests by law enforcement personnel. We will disclose such information when we have a good-faith belief that it is necessary to comply with a court order, ongoing judicial proceeding, subpoena, or other legal process or request to FDNA brought in any country throughout the world, or to exercise our legal rights or defend against legal claims.
Disclosures to others
What choices you have for your information
We may keep the personal information we collect from you indefinitely, unless and until you request to change or remove this information.
You have a right to modify or remove the data about you, which has been collected pursuant to your decision to become a User.
You can review the personal information you provided us and make any desired changes to the information you publish, or to the settings for your account, including your email and contact preferences, at any time by emailing us at email@example.com. You may also make these changes by updating your Profile on our website or mobile application. Please be aware that even after your request for a change is processed, we may keep a copy of the information which you originally provided to us in our backup and/or archival copies of our database, as we deem necessary to comply with our legal obligations, resolve disputes, and enforce our agreements.
Changing your selections about our communications to you.
You can choose to receive educational and event communications or product or other related communications from us at any time, or, if you have chosen to receive such communications, choose to unsubscribe from receiving such communications at any time, by updating your communications preferences at https://www.face2gene.com/preferences or by emailing us at firstname.lastname@example.org. As long as you continue to use the Services, we will continue to communicate to you any information relating to product support, operations and updates and related communications. If you wish to stop those communications, you will be requested to close your account and stop using our services.
Removing information and Closing Your Account
You can also request to remove your personal information and close your account at any time. If you do so, we will remove all of the information that you have provided to FDNA from our publicly viewable database, as well as any private information that you have stored with us and we will deny further access to our Services. We may retain certain data contributed by you if we believe it may be necessary to prevent fraud or future abuse, or for legitimate business purposes, such as analysis of aggregated, non-personally identifiable data, account recovery, or if required by law. We may also retain and use your information if necessary to provide the Services to other Users. For example, just as an email you may send to another person through an email service provider resides in that person’s inbox even after you delete it from your sent files or close your account, communications to other Users, as well as your contributions to professional message boards, may remain visible to others after you have closed your account. Similarly, other information you have shared with others, or that other Users have copied, may also remain visible. FDNA disclaims any liability in relation to the deletion or retention (subject to the terms herein) of information or any obligation not to delete the information, subject to applicable data protection and privacy regulations. FDNA does not control when search engines update their cache, which may contain certain public profile information that has since been removed from FDNA’s publicly viewable database.
To request that we close your account and remove your information, please send your request to email@example.com. Please send your request using an email account that you have registered with FDNA under your name. You will receive a response within ten (10) business days of its receipt.
What your obligations are
As a User, you have certain obligations toward the other Users with whom you will be communicating. Certain of these obligations are imposed by applicable law and regulations, and others have become commonplace in user-friendly communities of like-minded members:
- You must not download or otherwise disseminate any information which may be deemed to be injurious, defamatory, violent, offensive, racist, sexist or xenophobic, or which may otherwise violate the purpose and spirit of FDNA and its community of Users.
- You must not provide information to FDNA and/or other Users which you believe might be injurious or detrimental to your person, professional or social status.
- You must use our public message boards for clinical, not commercial use. While we do allow selected client outreach for market research, these messages have a distinct format and channel-level opt-outs to protect our members. Those found soliciting, scamming, or spamming other members will be removed or suspended from the network at our sole discretion.
Any violation of these guidelines may lead to the restriction, suspension or termination of your account by FDNA, as we take these principles seriously and consider them to be the basis on which our Users adhere to the FDNA website and the services which it offers.
How we protect your information
Protecting your personal information is also your responsibility. We ask you to be responsible for safeguarding your passwords used to access our Services. You should not disclose your account information to any third party and should immediately notify us of any unauthorized use of your password.
EU Data Compliance
FDNA complies with the EU General Data Protection Regulation (GDPR) in regards to collecting, processing, and transferring the personal data of our EU Users from the EU to non-EU areas, primarily the US and/or areas providing an adequate level of data protection according to the EU (i.e. Andorra, Argentina, Canada (to commercial organizations), Faeroe Islands, Guernsey, Israel, Isle of Man, Jersey, New Zealand, Switzerland and Uruguay). As necessary, FDNA uses “Standard Contract Clauses” (SCC), as determined by the EU data directives’ model clauses, to enter into agreements in the EU (with sites and/or third party vendors) to ensure compliance with applicable EU data protection and privacy regulations for our EU Users. If you have any questions or concerns, please send an email to firstname.lastname@example.org.
last update: May 25, 2018